Tag: Vitiligo

My dance with Michael Jackson

My dance with Michael Jackson

 

I grew up with MJ. In my eyes he was divine and I even went as far as begging my mum to get me a sparkly glove.  At a young age I got his strong lyrical message and connected to his amazing beat structure and musicality.

I felt his message and I felt connected to his individuality and that as a famous person in the eyes of millions he too felt alone and misunderstood.

Having had three children now and truly getting new life lessons and the appreciation of advocacy as a parent I have learned and shown my self an inner strength I believe we get as you become a parent. Maybe I was not the strongest in my voice for myself yet when it came to my kids I could embrace the lioness within.

In your children you have a second chance to go through any struggles or issues you may have had as a child yourself.  It is also the time you get to help set out a path of understanding and compassion for your children so they can make their own ways, feelings, connections and so forth.

One of the big lessons we have had to experience in our family is acceptance by others, treating others as you would wish to be treated and simply appreciating others for whom they are and not what they look like.

Four years ago we moved away from a city centre where we were seen as pretty regular people with a thriving business we were known in our area and respected.  We moved across the Province to a farming community where our world was literally turned upside down.  We are now the outcasts, the freaks and for this the children endured the harshest criticisms and the like from people that preach their love of a higher power and goodness of all.

My tattoos and personal style seem to have stirred controversy amongst the community and for anyone that has tattoos will understand there comes a time when you simply no longer see them.

I do not see myself as others see me and that’s life, really isn’t life just about perspective?

Looking different has been an opportunity for my children to learn and at the end of the day they do not see me any differently.  This I know as they know me no other way.

2 summers ago I started developing random spots on my body where all pigment was absent and I was left with splotches.  It was not until this summer that is dawned on me what was going on.

At first it was a bit of a running joke and as the amount of spots increased as well as their locations funny turned into insecurity.  As odd as that may sound as I am heavily tattooed on my upper body, now my body was making it’s own art.

At first my insecurities got the best of me and then knowing my family saw me no differently I moved into researching Vitiligo which ended up being ridiculous.  It seems there is not much information or understanding of the condition other than it being an auto-immune disease.

I would read there could be a connection to the Type one Diabetes I live with as I am Insulin dependent which basically means I give myself injections.

During my research simply out of curiosity and absent of all fear I decided to google images of Vitiligo to see where this could go and all of my thoughts came to a stand still when “His” image came up first.

I was flooded with an over whelming sense of compassion and a little taste that would have my mind boggled in appreciation for Michael Jackson.

My whole life I have gone out of my way to make myself different through tattooing, hair colouring and clothing style and yet when my body decided to join in, this caught ME off guard.

I then could barely get my mind around how “He” did it.

Michael Jackson’s career in front of the public eye started very young in his life.  He was younger than my children are now in age and what do we all know about being famous or known, well it’s that you have to look the part.  Image is everything and with image comes pressure in order to succeed.

What have I learned about Vitiligo, you cannot control it, there is no cure and there is no way of knowing how fast and large or even where on your body the spots of absent pigment will show up on you.

For me the Vitiligo is only very noticeable in the summer months because I tan.  I am naturally a fair skinned person so the spots are barely there yet for any person with a darker pigment skin this jig saw puzzle of sorts, the un-uniform pattern that the Vitiligo paints on it’s canvasses becomes even more present on they.

So being that Michael Jackson was of a darker pigment skin, young in age being prepared for a huge career in front of the public eye and now discovering these odd spots upon his skin, I cannot imagine.

In hopes of trying to camouflage himself for acceptance as the pressure would increase as his fame escalated he would receive backlash as his looks changed. He would be persecuted for trying to be as one.  It makes me feel for his message even more.

For this and that moment I connected to MJ and from his own personal strength and integrity I let go of what ever my mind wanted to conjure up.  I was great full for this dance with Michael Jackson.

We have always heard or been told to never judge a book by the cover and there is a lot of truth in those words. As a human one of the greatest gifts is our ability to self express and be individuals.

This coming year I have decided to home school my children because I want them to embrace who they are and to grow and excel in their own beautifulness.  I think the things we might feel are different or awkward about ourselves are indeed what make us unique and beautiful.

Some of us are not so lucky to choose what makes us look different than others yet we need to embrace each others choices, there is beauty in us all.

This is not for a selected few.

 

 

 

 

Colouring the Crown of Glory..

Product review: Nice and Easy Colour foam

As I have a background in hair design I know hair colouring is one of the best money making services for a salon as the service is based exactly that, the stylist’s ability to apply product and the product (hair colour) not being costly in itself..

I am at a point where I am colouring my hair every two weeks, to go to a salon would be costly and I am not willing to put that money into my hair when I am only seen in public on average 4 times a month. So I made the choice to do this for myself, with my daughter Hudson’s help I am successfully able to maintain the illusion of my jet black hair.

I am naturally a level 06 dark blonde with slight ash.

Up to this point I settled with the colour line GOSH, purchased at Shopper’s Drug Mart. I have a fair amount of white in my front hair line due to Vitiligo a condition where the skin is absent of pigment.  These white areas are where I have a widows peak and this is the first place my re-growth becomes obvious.. My white hair seems to have become more and more resistant to colour no matter how long I let it process for..

GOSH is a gel colour that seems to last a 2 week period in my hair.

Recently a new trend in the world of home hair colouring has arrived in stores.. I guess the angle is to make hair colouring for the modern woman easier and now mess free.. I know better and that anything shown on commercials is not really as it seems..

Although I am very partial to the traditional gel type colouring systems I knew I needed to try the foam so I fully understood what it was before my choice between gel or foam was possibly taken from me..

I will be honest I was not sold at first, I know from my education as a stylist that unless you part your hair in a traditional 4 part section, dropping down quarter inch slices you cannot be sure to get even coverage.

That is why I chose Nice and Easy Colour foam by Clarol, it was on sale and not going to be a dent to my pocket book. I had to read the instructions to mix the product and they made the application process seem as easy as 123.. Simply pump the foam into your hand, apply to head and make a shampooing massage.. Ummm yeah..

My gut told me to not be so relaxed and carefree and so I did do minor parts to my hair.. As I applied the foam it was evident that combing my hair with the foam was not going to be possible as it would be with gel… I tried to do as much of the front as I could then recruited Hudson to finish the back..

I had the usual colour on my face and neck and noticed when cleaning the counters of the bathroom the foam left little black spots and if my bathroom was fancier than ours I am sure I would be ticked off with the clean up..

The real test of the foam for me would be coverage and how well it was removed from my skin.. After my shower I did have splotches in my hairline yet my eyebrows cleaned up nicely..

I would not recommend this product to change to a new colour.. I would use this product again because I am re-touching my re-growth and because of the level I am using.

When re-touching it is very important just to do the strip of re-growth because every time you over lap the colour you are causing banding. Since I am depositing to the darkest colour 01 you cannot see this and that is why I am ok using the foam once in awhile because the only mistakes you will notice is in my re-growth. I am sure I have missed patches, that are being camouflaged.